Greg is here to visit with Gabriella (and us) this weekend. He says that she is a sweetheart! Her head is still swollen, her antibiotics are complete and Monday marks a critical week (life/death) as they begin to take her off the paralying meds and she begins to do some moving.
There are positive/negative things that comes with this. The negative-bronchial spasms and another "episode" and the positive-she will see her mommy/daddy/grandma/sister again and her auntie Mel for the first time.
An interesting thing happen while Greg was visiting her-Gabriella held on to his hand! Previously her grip was only our finger inside her's-yesterday, Greg came out after his visit and said "she has a strong grip"...I was puzzled as she didn't have a "grip" the past two weeks. When I visited next, I took her hand as I always do and when I tried to release it at the end of my visit, she was gripping tightly! she was telling us "I'm here".
I praise God for this wonderful little girl with such will to live and such a beautiful spirit. I know that she is truly our "unique" (as the doctors call her) and miracle baby girl.
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My special Angel.
making me smile!
Nurse Linda has the funniest giggle!
What would I do without you?!
My devoted bedside buddy!
This pic was taken the day she started running a fever from the blood infection at her Central Line site. She was warm but sleeping pretty peacefully in daddy's arms. Thank you, God, for clearing the infection so quickly. We trust you for all things concerning this beautiful Baby Girl.
Christmas 2008 - In Memory.
Although I had thought that I had made my last entry in Gabbie's blog, I still felt that I should include our beautiful angel Christmas tree memories. Who knows, from time to time, I may feel the need to add another entry, so I will follow my heart. God bless you and keep you. Jean
Today - Sunday - Gabbie's Final Blog.
Today's entry marks the final blog for Gabriella's website, except for her final Professional Picture in her pink dress that will be added upon it's arrival from the photographer at Now I Lay Me Down To Sleep. It is my hope that everyone who visited this site or who continues to look back at this site, caught a glimpse of my beautiful Angel of a granddaughter, Gabriella Christina Mayo. It has been a grandmother's point of view of her very precious, loving and giving grandbaby who touched the hearts of so many people while laying in her crib for the past nine months. Even though she couldn't go to them-daily visitors came to her, being drawn, I am certain, and in return, Gabbie reached out to them with her message of unconditional love. If you were one of those visitors, it was no accident. It was ordained that you be there. That you know Gabbie, and that Gabbie know you. There was something truly special about this fragile, little girl. It was amazing to me. It was God. My love to you all. God bless you greatly for loving my granddaughter. Jean Mayo
The Future of This BlogSite
Family & Friends - even friends that we have not yet met,
Even with the sad passing of our lovely Gabbie, who is now (we believe) the brightest, little star in the heavens, this blogsite with continue with her last few days of life pics, along with any touching letters, comments or thoughts that have been shared with us concerning Gabbie. In addition, the "celebration of her life" pics and last professional "Now I Lay Me Down to Sleep" pics will also be added. After that, this blogsite will be attached to the upcoming foundation in her memory to help fund research for future diaphram & nerve transplants - something that was not available at present for Gabbie, in order to save her life. The blogsite, in total with all entries will be available for understanding Gabbie's plight & getting to know this angel. Her father, her uncle and her grandmother are committed to starting the foundation in her memory, so please look for information concerning it and how you can help in mid-January/2009 - what would have been Gabbie's first year birthday. As far as is known, the foundation will carry the name Gabriella's Miracle Foundation, however, this may be subject to name change. This foundation not only plans to fundraise for her cause, but to also provide charity events in her memory. We already have many, many volunteers on board, ready and waiting to help. We thank God for this. The number one focus will be to honor God with the memory of our lovely Gabriella. Thank you and God Bless. The Mayo family.
Even with the sad passing of our lovely Gabbie, who is now (we believe) the brightest, little star in the heavens, this blogsite with continue with her last few days of life pics, along with any touching letters, comments or thoughts that have been shared with us concerning Gabbie. In addition, the "celebration of her life" pics and last professional "Now I Lay Me Down to Sleep" pics will also be added. After that, this blogsite will be attached to the upcoming foundation in her memory to help fund research for future diaphram & nerve transplants - something that was not available at present for Gabbie, in order to save her life. The blogsite, in total with all entries will be available for understanding Gabbie's plight & getting to know this angel. Her father, her uncle and her grandmother are committed to starting the foundation in her memory, so please look for information concerning it and how you can help in mid-January/2009 - what would have been Gabbie's first year birthday. As far as is known, the foundation will carry the name Gabriella's Miracle Foundation, however, this may be subject to name change. This foundation not only plans to fundraise for her cause, but to also provide charity events in her memory. We already have many, many volunteers on board, ready and waiting to help. We thank God for this. The number one focus will be to honor God with the memory of our lovely Gabriella. Thank you and God Bless. The Mayo family.
MANY THANKS.
Our family is overwhelmed & very humbled by the giving & generous spirit of our family-including our hospital "family", our friends and our church family. We want you all to know how very much we appreciate everything that you do for this family and every word of encouragement that is given. We know that God will bless each one of you in the generous & kind way you have reached out to us. We also know how very much Gabbie is loved by all of you. She is truly a special little girl.
New Pic with Nurse Michele.
My special Angel.
Visit My Cousin Maura's Webiste! She's a Cutie!
Nurse Rosemary
making me smile!
Primary Nurse Linda
Nurse Linda has the funniest giggle!
Primary Nurse Rosemary
What would I do without you?!
Primary Nurse Michele
My devoted bedside buddy!
Sleeping Gabriella
This pic was taken the day she started running a fever from the blood infection at her Central Line site. She was warm but sleeping pretty peacefully in daddy's arms. Thank you, God, for clearing the infection so quickly. We trust you for all things concerning this beautiful Baby Girl.
Gabriella loves...
- family & friends
- napping in the hospital rooftop courtyard!
- the wind in her hair!
- the sunshine on her face!
- her "pull toy" rattles
- lots of comforting
- Sunshine, the Elephant
- splashing water in her bath tub
- holding things in her hand.
- daily visitors.
- her Angels.
- music, music, music!
- her hand free from the "sock"
- Hello Kitty!
- her new rattles!
- her Papasan chair -but not the vibration!
- pointing!
- trying to reach for things
- her handmade Hello Kitty quilt from New Mexico
- watching movies!
- watching her bugs mobile
- listening to her new CD player
- smiling!
- poking herself in the eye!
- watching the camera!
- sticking out her tongue
- her cool sister (and can she sing!)
- visits from family members-please come!
- kisses from family
- smiling when mommy speaks Spanish
- lots of attention from bedside!
- her bathtime-especially the back massages
- to take naps
- her "angel" nurses
- her Great Grandma's specially made bright colored quilt
- to look at herself in her mirror
- to put her fist in her mouth!
Milestones
- preparing for "angel wings" - 9 months
- roadtrip outdoors for the first time - 9 months
- loss in some motor skills & eye focusing
- breakthrough seizures periodically
- brain fluid swelling due to fever/seizure activity - 8 months
- seizure activity as a result of high fever - 8 months
- high fever due to unknown origin - up to 108F - 8 months
- first bath in baby bath tub - enjoys water!
- shaking rattles
- lots of active kicking
- reaching hand/foot for visitors
- second surgery-removal of gortex patch on wound
- following visitors with eyes & head
- turning head back & forth w/traech
- holding rattles/toys in hand
- 7 month birthday
- weaning from some medications.
- two new bottom teeth!
- feeding tube back in at 6 months.
- 6 month birthday
- finds comfort in nurses/caretakers - 5.5 months
- reaching for family & toys - 5.5 months
- weaning off of some medications - 5.5 months
- began watching movies & listening to lullabies - 5.5 months
- reaching for things & family - 5.5 months
- birthday celebration at 5 months
- met Great Grandparents - 5 months.
- blood infection cleared-5 months.
- discovered her face-5 months.
- sticking out tongue - 5 months
- blood infection at the Central Line - 5 months
- lots of smiles since recovering from surgery - present
- moving head back/forth w/traech at 4.5 months
- discovered her hand at 4.5 months
- recovering from surgery-critical but good at 4 months
- emergency surgery at 3 months
- birthday: Jan 13, 2008
Please keep our family in your thoughts and prayers. We are grateful for 9 months with our little Gabbie who was never supposed to live on several occasions, but due to her little warrior spirit-she surprised everyone-even the doctors. Even at the end, she was determined for 8 hours to fight and show the world that she could breathe on her own. She will always be our Miracle Girl. Please look for information concerning Gabriella's Miracle Foundation coming in January/2009. (name subject to change) Thanks so much to everyone for all your continued support. We stand through this because of your prayers and God's continued hand of strength upon us.
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